Something I haven’t discussed here much…

29 May

Are my husband’s health problems. The long and short of it is that he was born with a defect in which caused is bladder to back up and kill off his kidneys. He received his first transplant (from his mother) at 16, and that lasted him until he was 21 – he has been on hemo-dialysis ever since (this, by the way, is what caused our infertility) . For a long time he was not pursuing a second transplant because he was very disappointed that the one he had already been given did not last longer than it did, but around the time that we met he began the very long process of being put on the transplant list (that was about 6 years ago). Two years ago we finally got on the list and were told it would be a 6 or 7 year wait.

During these past two years Hubby has been seeing specialists to try and figure out exactly what caused his mother’s kidney to fail and to correct it before it was Hubby’s turn at the top of the list. The doctors have finally decided that Hubby’s bladder is too small and that they are going to need to do surgery to correct it. This will involve going in, removing a piece of the intestine, cutting off the top of the bladder and then creating a BIG bladder with the piece of intestine that they removed.

Well, we just found out that that surgery is going to be happening next Thursday. We were sort of miffed that they were doing it so soon, since we have 5 years left on the waiting list. To our shock, disbelief and guarded excitement, it appears as though “the powers that be” have decided to credit Hubby for the extreme amount of time that he has spent on dialysis and are pushing him to the top of the list. Apparently they are aiming for a transplant sometime in September!!

We haven’t told many people, and I feel weird even typing it, because we are so afraid to get our hopes up completely. There is so much red tape involved in getting a transplant, pretty much anything could happen between now and then and nothing is guaranteed.

I’m very excited that Hubby is going to be getting this surgery out of the way next week, but I am very anxious about it – particularly because I’m not going to be able to be there as much as I would like to be. I really shouldn’t go at all (pregnancy-wise) but that’s not really an option. I *HAVE* to go, I have to be there when he comes out of surgery. Part of the problem is that the surgery is going to be in LA (about an hour from where I live, if there wasn’t traffic, which there ALWAYS is) and Hubby will be in the hospital for a total of about 5 days. The recovery will then be about a month long; by poor mom will be taking care of two bed ridden people. Poor mama!

So, that’s the exciting new news in my life at the moment.

I’m feeling a bit better about this pregnancy now, for some reason bed rest always seems to do that for me. As miserable and bored as I am, at least I feel like I am doing EVERYTHING I can…and wacky stuff tends not to happen while I am on bed rest either. I have been on the torture pills (terbutaline) for two and a half days now and I have less cramps/pains/contractions every day – yay! I am still spotting though.

Sorry this is so long, this is the first time since starting the meds that I have felt well enough to sit up and type for any length of time.


16 Responses to “Something I haven’t discussed here much…”

  1. Nix May 29, 2008 at 2:28 pm #

    Good luck for your hubby’s operation. I’ll be holding thumbs for you four next Thursday.

  2. JJ May 29, 2008 at 3:06 pm #

    Will be sending positive thoughts for your hubbys surgery!

  3. Alicia May 29, 2008 at 4:02 pm #

    Great news about the transplant. Ill be thinking about you guys.

  4. Katie May 29, 2008 at 4:12 pm #

    That’s amazing about the transplant….you and your hubby will be in my thoughts and prayers for the upcoming surgery and the things to follow.

    Also, what is your email address?

  5. Michell May 29, 2008 at 5:10 pm #

    Good luck with your husbands operation and hope that kidney transplant happens soon. As far as you, take care. I hope that the bedrest isn’t a permanent thing and hope it’s not too boring.

  6. Jill May 29, 2008 at 6:05 pm #

    Wow…I’ll be praying for you and your husband during his surgery, recovery time and upcoming transplant! Sounds like you guys have been through a lot…I wish you nothing but the best, girl.

    Take care!

  7. Ms. J May 30, 2008 at 6:11 am #

    Sounds rough — you two have certainly had your share of medical battles. Extra prayers are in on order for you, hubby, and the babies.

    Please, please, please try to still take it easy for YOU and the babies as much as you can — I am sure the hospital will be able to accommodate you with a wheelchair and place to lay down, if you just ASK!!!

    I am sure that your Hubby will recover better if he is not worried that YOU are pushing yourself, ya know?!


  8. Jendeis May 30, 2008 at 7:28 am #

    Hoping that everything works out for you, Hubby and the babies!! I agree with Ms. J, if you feel that you want to be at the hospital (which is completely understandable), have them give you a place to rest and lie down if you need. Many hugs!!

  9. sara May 30, 2008 at 9:16 am #

    Oh girl that is great news about moving up the list. But wow, you guys have been through a lot. I will be keeping you both in my prayers for next week. You are such a strong woman to be handling everything so well. We all could learn a lot from people like you.

  10. S May 30, 2008 at 11:30 am #

    Great news about moving up that list!! Just hang in there, you guys will do just fine!! Prayers for a wonderfully successful surgery!!!

  11. Katie May 30, 2008 at 3:39 pm #

    More thoughts and prayers coming your way. What a blessing about the transplant AND that nothing wacky is happening as long as you stay put.

  12. Bean May 30, 2008 at 5:06 pm #

    Oh my goodness. Congratulations on moving up on the transplant list! Best wishes to you both for successful surgery and continued good health of those babies!

  13. Tashida May 30, 2008 at 8:30 pm #

    My thoughts and prayers will be with you and your DH during this time. That is awesome that he was able to be pushed up the list.

  14. twondra May 31, 2008 at 4:13 am #

    Awww, sweetie, I’m soooo happy for you guys with the transplant. As you know, I can relate completely! 🙂 It is tricky stuff and I will be praying so hard for you guys that it doesn’t get pushed back. I know anything can cause it to but I hope and pray that doesn’t happen to you, sweetie. How did they figure out that infertility was related to the hemodialysis? Did they give a reason why? I don’t want to go into exact details here as it’s kind of personal but we’ve always wondered that about Mark and I was wondering how they knew about your hubby. If you don’t feel comfortable answering here, you can e-mail me at

    If you need a friend to talk to about this transplant stuff, don’t ever hesitate to e-mail me! I remember how lonely it was.

    You’re soooo strong girl!

  15. Michelle June 1, 2008 at 7:54 am #

    Wow. I am so glad to hear that something else good is going on in your life. One less thing to worry about it exactly what the dr ordered for your pregnancy. That is such awesome news. I bet you guys were totally floored. Best wishes for the surgery!

    Good to hear that the meds are helping calm things down too. I can totally empathize with being stuck in bed much against your will.

    Best wishes!

  16. BlueBella June 2, 2008 at 5:47 pm #

    Whoa! Good luck with the surgery and you’ll all be in my thoughts and prayers. How wonderful, and really, this is a good time . .. you know. . . before you have twins running around!!!!!

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