I Finally Have Transplant News!!

Try not to fall out of your chairs, we *finally* heard something from Cedars Sinai (yeah, after the past YEAR of waiting).
Hubby has an appointment on October 22nd to meet the transplant team. They do not have a start date for the IVIG for him yet, but they have *said* (I know their word means very [...]

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Evelynn, Lennon and Nolan…oh my!

So, neither the plastic surgeon nor the neuro think that Lennon has ptosis. I am far from being 100% convinced, her eye improves in the AM but then starts to droop again as she gets sleepy (a symptom of ptosis). We go back to the plastic surgeon for another post op in 6 weeks, so [...]

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I’m Back!

Well, it’s done.
Was it as bad as I feared? No.
Was it as easy as I had hoped it *might* be? NO!
That was the worst experience of my life to date (I’m talking about Lennon’s surgery, BTW, guess I should have mentioned that?). BUT, she is doing fantastically well already! We even went to Disneyland yesterday [...]

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Lennon’s Surgery Tomorrow

There are many things I could say, and many things that I intended to say today. But in the end, all I CAN say is this:
She is so perfect, sweet, easy going and charming. She is a beautiful person inside and out, and I worked so DAMN hard to get her here…I am terrified that [...]

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Protected: Disneyland! (not Diensyland, as I accidently titled my picture files)

There is no excerpt because this is a protected post.

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Must Remember to Breathe

Lennon’s surgery is a little over a week away and I know, I KNOW, I promised to save all of the crazy hissy fits for the site I made just for that…but now that I have family going there I feel too guilty to freak them out. I feel like I have to pretend to [...]

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